Friday, September 30, 2016

I wish Planet Cancer still existed.

Now more than ever, I need that community to get me through this new phase of my life. The message boards and personal pages were a wealth of information for kids going through the dying process and it's commiseration I sorely need right now. I met my first friends with Ewing's on PC.

Then it was sold to LiveStrong (evil), totally dismantled into a content/ad-making machine and everyone left.

23 comments:

Arek Szopa said...

Kaylin,

Nothing in the fragmentary perception of thought can help.

What you need now is Unitary Perception.

Please, look it up.

John said...

I'm sorry that Planet Cancer is no longer there for you. My daughter, Hannah, found you there before she died and drew a great deal of strength from you. I can only imagine how frightening this is for you. Nature is so damned indifferent to our suffering.

Servivorgirl said...

I wish I knew you. So sad your support group is not there. I do not know your beliefs but we are immortal. There is more beauty than we can inagine on the other sode. I am praying for you. Peace and Blessings

LaVerne said...

I wish Planet Cancer or something similar existed for you, too, Kaylin. I don't have any insight to share, but I think about you often, and I've reread many of your posts and have your "comic" book. You have shared MUCH insight for others. Peace be with you.

Anne Fuqua said...

Feel the same way about the old Mass General Brain Talk Forums...sold or just abandoned altogether ....tens of thousands of hours spent typing posts by so many deleted into the abyss.....the "new brain talk" Is nothing like the old.,,,,was a huge part of how I coped early years while I was still walking.

Teale LaRosa said...

A friend of mine is in remission from Ewing's. When she was diagnosed, I told her about seeing you on MTV way back when. She posted something today and it made me think of you so I did a google search to find out how you were. All I could say was "dammit" when I learned the truth about this stage of your life. I wish you the best, and do hope you will write as you're able.

Deborah said...

Just lovelovelove.

Deborah

lisa said...

i was diagnosed of TNBC 6 years ago and i was terrified because the oncologist told me that it is the most aggresive form of cancer and also that there is no cure. I almost gave up but i had to try series of solution like chemotherapy and which i did twice and the turmor were still there, this even made it all worse and i cried all night. I was able to meet doctor kennedy whom used his medicine to cure me in just a few months and i went back for diagnosis and i was clean and tested negative. To those who plan on giving up don't because there is a cure i believe the medicine will work for you too if you try. Contact him directly on drkennedy118@gmail.com i am positive he can help you.

Anonymous said...
This comment has been removed by a blog administrator.
kaylin andres said...

Did you talk to Melissa there? I guess it is just the nature of the internet.

Danielle Martin said...







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Theo said...

Hey Dr Jose -- A cabal of dark magic practitioners connected by the Internet is developing a spell to give you cancer, using chants mentioned in the Apocrypha and xenograft tumors.

Angie said...

Fuck. I'm sorry you're going through this. I watched your episode of The World of Jenks and check in on your blog every time you pop in my head. The world needs more people with your strength, spirit, compassion. I wish I had the chance to meet you and gain some of that from you. Keeping you in my thoughts. Thank you for your openness and honesty.

Anonymous said...

I so hope you're doing okay.

Anonymous said...

Thank you for your words. So many people are thinking of you every day.

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aggressive form of colorectal cancer. But WhenI came across doctor Kumar from India he cured my terminal cancer with herbs I'm living very healthy today you too can be save or someone else contact the cancer and kidney doctor via email: DR.KUMARDAVID42@GMAIL.COM

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frank dustin said...

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