Vintage Cancer #2: Beware the Quack

mtv is using my golden tears to raise cancer awareness, and I'm ok with that.

After the surgery last month I had to learn to walk again without part of my lung & diaphragm. The very first day they had me sitting up. The second day I took my IV pole, two vacuum-suctioned chest tubes, a portable motor that sounded like a shop vac and 3 nurses in tow for a walk (if you could call it that) down the ICU hallway. We even tried climbing stairs, but the tubes from my IV only allowed me to take 3 steps up, which I think would be manageable for even the most feeble degenerates among us. I stopped practicing the stairs after that. But I kept walking, and 3 or 4 days later I was doin' laps like lance armst--- I mean, like a pro. It's amazing how fast the body can recover.

After I was discharged from the hospital I went right into chemo cycle #5. I think the extra pain meds have made me extra nauseous this time. There are lots of other "extras" that pain meds give you, like extra hard poop. extra heavy eyelids. extra street cred. extra helpful friends.

For the last few days, Jon & I have been editing the final version of the comic. It's come so very far from the hair-brained scheme we hatched years ago. I had time to kill in the waiting room before one of my (many) doctor appointments, so I pulled out a test-print and started to read. In no time I was sucked into a colorful world that echoed, in a surreal way, the hospital around me and issues I was immediately facing. Jon's drawings are delightfully intricate; you can take your time on each page and notice new details with every read. I was disappointed when  my name was finally called, because it meant a transition from this magical cancer-comic world to real world-- and real cancer. Bottom line: great for making hospitals more bearable. I can't wait until issue #1 is finished.

I suppose I should mention: I will be featured on Season 2 World of Jenks on MTV, which premiers this Monday. The crew followed me for a year as I moved from San Francisco to NYC to pursue my career and a cancer-free fresh start. I'm horribly embarrassed about the whole thing, but I remind myself that I participated in this project to promote young adult cancer awareness and issues of survivorship. When I was first diagnosed I felt so shamefully alone-- my cancer happens to one in a million, and it's even rarer in young adults. The prognosis is grim, but there are a few survival success stories out there if you look hard enough. I wanted so badly to find someone I could relate to, someone to learn from, some lucky soul who had found the light at the end of the IV drip and was ok now. I wanted to be ok too, someday. What I needed was empirical hope. I needed proof through personal experience that my cancer was survivable, that pain is surmountable, that the future is inevitable. I needed accounts of young adults overcoming the physical & emotional upheaval of cancer so that I could be better equipped to navigate my own tumultuous journey. Trouble is, until very recently, people have rarely been encouraged to open up (I mean really open up) about Cancer due to negative social stigma, fear of vulnerability or judgment, or outmoded cultural mythologies of illness. Eff that, let's talk about it! Let's set the record straight and help the newly diagnosed. Empirical hope, knowledge, camaraderie-- this is what I wish to give others by sharing my story with MTV.

Hope creates strength, and with strength we can survive. to ride ziplines.

Stupid Cancer

I wore this Stupid Cancer wristband during my surgery as a good luck charm. Still in hospital but hope to be freed soon. Flipping the bird at cancer, not you...

more things on strings

I awoke to find this balloon hovering suspiciously close to my face, obviously mocking me with its grotesquely stretched mylar smile. 

I punched it.

[EDIT: Don't get me wrong, I love smiley balloons! Keep them coming!]

It's like looking in a mirror...

If you're curious to know what I look like right now in ICU after Friday's surgery, this Iranian space monkey depicts me perfectly, from the velcroed-in leg restraints and little socks, to the bald head and sad face of pain and pure terror of his fate in life. Thank you space monkey, for making my life a little easier. Now I don't even have to take a picture.

Saddest picture ever.

Monkey business aside (yah I went there), surgery went fantastically well and I am slowly healing. They took out what was left of my tumor, the lower right lobe of my lung, part of my diaphragm muscle, and scraped some cancer from the vena cava that leads to my heart. I've had an epidural & two chest tubes put in, and I'm of the opinion that three is enough for one lifetime. That shit HURTS.

It is very hard to walk due to weakness and shortness of breath, but I'm working with a physical therapist every day to strengthen my stamina. I'll be inpatient at SK for the next week.

I hope your fate is as good as mine, space monkey.

Wig Post

A good wig is hard to find, amiright?


This time around I'm really liking South Korean-made wigs from Gabalnara-- cute styles & a very realistic quality... you just have to look past the creepy "Ulzzang" faces.

Holidaze...

Merry Christmas, Happy New Year, and all of those other greetings I have so egregiously missed for the past few months of not blogging. I hope you will forgive me.

For those interested in the numbers: I am now almost done with chemo cycle 4 of 12, the scans are showing that the lung tumor is shrinking nicely and I have surgery scheduled for Jan 25th to remove it-- something I am thoroughly dreading. Afterwards, more chemo and radiation until September.

I am having a much harder time emotionally this time around. Something to do with the unspeakable bummer of a 3rd diagnosis while still in my 20's, feeling jaded and weak and furiously angry at my lot in life. An impalpable sense that I am being cheated wafting all around me at all times. I have no healthy way of disposing this anger and frustration so it comes out surreptitiously in the form of constant grumpiness, which I'm sure makes me a pleasure to be around. It's probably not you, it's me. I've been craving a lot of time alone and I'm not sure people understand why I need it, but I do.

Grumpiness aside, I am so incredibly grateful for the support system I have & all of the wonderful people who have donated money to help smooth the rough path to remission. These donations help me afford a car service to chemo in the mornings (so I don't have to take the crowded flu ridden subway), healthy groceries, and medical deductibles. I wish I could thank every benefactor personally but I realize the biggest act of gratitude is to keep writing and sharing-- the things that brought you here in the first place.

I'm planning a bunch of new posts soon, but to tide you over, I'd highly recommend checking out this book, The Emperor of all Maladies, a surprisingly intimate and fascinating amalgamation of case studies, the history of cancer, its significance in culture throughout the ages, and how modern cancer treatment came to be.